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This 5-Year-Old Turns Blue Every Time She Cries, She Needs An Urgent Open-Heart Procedure To Live

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    At a time when the world was haunted by the constant threat of COVID-19, Mohammed Akmal was desperate to find a way to save his daughter, Sara’s life. With the country going into lockdown, Akmal lost his job at a general store in their hometown in UP, leaving him helpless and struggling to not only look after his family of four but also afford Sara’s life-saving procedure. 




    “It all happened at the same time - we found out about Sara’s heart condition, the country went into lockdown and I lost my job. It was impossible for me to afford her procedure despite trying my best. It’s been over two years since, and no matter what I do, I’m always falling short. Sara’s condition is getting worse with every passing hour. Without urgent help, we could lose her.”


    Today, Sara’s condition is extremely critical. Akmal has no time to waste. He needs to find a way to get Sara’s life-saving open heart procedure soon. 


    Her Heart Is Too Weak To Keep Her Alive Any Longer


    Sara recently turned 5, and the only thing she wanted was a cake for her birthday, and this time, her parents couldn’t refuse. Sara can’t run around or play like other kids her age because of her heart condition. In fact, she hasn’t even been able to start school. 


    “She keeps asking us why we have to keep going to Gurgaon to the hospital, but how do I tell my child that her condition is so fragile that even crying can be dangerous to her? Every time she cries, she turns blue and sometimes even faints! If she plays even a little more than she should, she gets a headache and throws up. We try to keep her as calm and cheerful as possible, but she’s only a child, this is not the life she should be living, only confined to playing on the bed…” 


    Sara was over 2-years-old when she was diagnosed with a serious heart condition. She has Severe Pulmonary Stenosis, a heart condition where the pulmonary valve, which acts like a door, is very narrow or blocked, making it tough for the heart to pump blood to the lungs for oxygen. This puts extra strain on the heart. Along with this, she’s also suffering from Single Ventricle Physiology a condition where a person is born with only one functional pumping chamber (ventricle) in their heart instead of the usual two (left and right ventricles). In this condition, the single ventricle has to do the job of both, pumping oxygen-rich and oxygen-poor blood to the body and lungs, which can be very challenging.



    “When she was younger, every time she ate or drank something cold, she would fall severely ill. She would have fever, cold and cough for days. When the doctor told us it was a heart condition we were shocked! My wife, Gulfisha broke down as soon she heard this. We did not know that a fever and cold could be a symptom of a heart condition.”

    Sara Needs An Urgent Open-Heart Procedure To Survive

    Sara is running out of time to get her procedure. This life-saving treatment has already been delayed for far too long, and now she needs it before it’s too late. Gulfisha is a housewife, and Akmal works as a daily wage labourer now. He earns around 300 rupees a day, with which he has to feed his family, manage Sara’s medicines and also try and save for her procedure.

    “She’s been surviving on medication now. I still haven’t been able to save three lakhs for her procedure. It’s breaking my heart to see her like this. Every time I leave home for work, I worry that I will get a phone call from my wife telling me that my daughter’s condition has worsened. I can’t help but blame myself, but I’m only a poor man. I can’t save my daughter alone. Please help me.”

    An open-heart procedure at the earliest can save this 5-year-old’s life and finally end her suffering. She deserves a childhood where she can go to school, play with her friends and sister, eat her favourite food and so much more - only you can make this a reality for her.

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