ALD Took One Child. This Time, a Mother Refuses to Surrender

"When you lose a child, a part of you dies forever. But when the second child battles the same sickness, you gain strength you never thought you had, because now you know you can't give up— Bandana Devi, mother of 7-year-old Amol.

In a quiet corner of Uttar Pradesh, a small house is filled with the sounds of hope and heartbreak. Here, seven-year-old Amol Maurya lies in bed, his body frail but his spirit unbroken. Amol’s childhood has been stolen by a rare and merciless disease—Adrenoleukodystrophy (ALD)—the same illness that took his elder brother’s life just a few years ago. For Amol and his family, every day is a battle against time, pain, and the fear of another devastating loss.

Amol’s story is not just about illness; it is about unimaginable courage. When his MRI revealed a Loes score of 6, his parents refused to surrender to despair. They searched desperately for a bone marrow donor, clinging to every sliver of hope. When a perfect match slipped away, Amol’s father, Vijay, stepped forward as a half-match, determined to give his son a fighting chance. On December 19, 2024, Amol underwent a bone marrow transplant in Delhi, a procedure that was both a lifeline and the start of a new ordeal.

Since then, Amol has endured more than most adults ever will. Chemotherapy ravaged his tiny body. A CMV infection left him with painful blisters and burns, requiring plastic surgery. His liver and bowels became infected, and a relentless Adenovirus struck in January 2025. His right kidney, smaller than the other, brings repeated infections and pain. By August 2024, Amol could no longer walk. Now, he is bedridden, his days filled with therapy and his nights with dreams of running and playing like other children.

The Maurya family’s love is fierce, but their resources are exhausted. They have spent nearly ₹50 lakh—borrowing, fundraising, and sacrificing everything they have. Vijay, a teacher, and his wife Bandana Devi, a homemaker, have given all they can. Monthly medicines cost ₹15,000, and a critical kidney procedure may cost up to ₹15 lakh. Every rupee is a prayer for Amol’s future.

Yet, what keeps this family going is not just the fear of loss, but the unbreakable bond of hope. 

Bandana, who has already buried one child, lies awake at night, haunted by memories and terrified of history repeating itself. “Addison’s disease will be a lifelong fight for Amol,” Bandana says, his voice trembling with both pain and resolve. “But with your support, he still has a chance.”

This is not just a plea for help; it is a mother’s cry for his only living child. It is a call to every heart that believes no child should suffer alone, and no parent should watch their child’s dreams fade away. Your support can help Amol walk again, laugh again, and reclaim the childhood that disease has stolen.

Please, stand with Amol and his family. Your compassion can turn their darkest nights into mornings of hope. Donate now, and give Amol the chance to live, to heal, and to dream.