Yuvansh May Not Live To Turn 2, Only One Life Saving Drug Can Save Him From SMA
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Story of the changemaker
“Until he was about 3 months old, everything about Yuvansh felt perfect. He would kick his tiny legs when we smiled, try to roll to his side, respond to sounds, and make soft little cooing noises. Then slowly, he couldn’t even do those, let alone achieving any further milestones. At first, the doctor said he might be a little late with milestones. We held on to that hope. We never imagined it would be a disease that could take our baby away before his second birthday.”- Rajesh, father
For babies with SMA Type 1, the first two years are the most dangerous. Many do not survive beyond that without treatment.
Only the world's costliest drug can save him
“It breaks me to even say this, but we are watching our son lose the little strength he has left. We cannot even comfort him when his body feels tired. We fear every cold, every cough. We keep thinking what if his breathing suddenly fails. No parent should live like this. I am so scared of losing him.”- Kiran, mother
There is only one known cure for SMA Type 1. A one-time gene therapy called Zolgensma that costs around 14 crore rupees. Rajesh is a constable and Kiran works as a clerk, who together earn seventy thousand a month. They can never gather such an amount on their own.
They have exhausted all savings, sold what they could, taken loans, begged for help. But they still need a huge amount to save their child.
Please help save baby Yuvansh. Your support is the only hope this family has.
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