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This Ramzan, While We Pray For Mercy And Blessings, A Swollen Brain Is Killing This 2-Month-Old Baby

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Story of the changemaker

While the world prepares for the blessings of Ramzan, for Md. Arif and Khushnuma, the “month of mercy” has begun with a test no parent should endure.

"They called my son 'cursed' because of his growing head. Neighbours stopped visiting our home. But to us, he is still our innocent baby. It was supposed to be his first Ramzan but I’m terrified it could also be his last. To watch our child’s brain swell, hear him scream in pain 24/7 and be told he is bad luck? He was just born and has already had 3 brain surgeries in two months…how much more can his tiny body take?"
Khushnuma, Mother

Imagine a two month old who has never known peaceful sleep. Because of massive fluid buildup in his brain, little Iltaah cannot turn his head. He lies on his stomach, burning with a 105 degree fever on most days.

Neighbours mocked his growing head, turning a medical tragedy into emotional torture.

Baby Iltaah suffers from Gross Hydrocephalus, where excess fluid builds up in the brain, causing severe swelling.
For Khushnuma and Md. Arif, the joy of first time parenthood lasted just fifteen days. Instead of lullabies, there are ICU alarms. Iltaah has spent more time in operation theatres than in his mother’s arms.

What began as a small bulge on his spine became a life threatening neurological crisis. Within 15 days of birth, he underwent his first brain surgery. For a few days, his parents breathed again.

Without surgery, pressure could cause permanent brain damage or death. Then the swelling returned, larger and faster. Just 8 days later, he underwent a second critical brain surgery. Now doctors say his brain is again filling with fluid and he urgently needs a third surgery to insert a permanent shunt.

“How can a fruit seller like me pay 8 lakhs just to keep him from dying in my arms? I sell fruits on the roadside. On a good day, I earn Rs.200. I haven’t worked for 2 months. Every time they take my son inside, I don’t know if I will see him alive again… I still beg Allah not to take my first child away.”
Md. Arif

Usually Ramzan is his busiest season, but this year his stall gathers dust. The family already borrowed Rs.2 lakhs. They now need Rs.8 lakhs more.

This Ramzan, a fruit seller’s hands are empty, not from fasting, but despair.

Iltaah has survived two brain surgeries. Let’s not let the third be out of reach because of money. Your kindness this Ramzan can help this newborn live. Donate now.

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